The LRG Welcomes New Board Member
Ron & Kim Agypt The Life Raft Group welcomed Ron Agypt to the Board this month. Ron is a retired insurance executive, father of three, and grandfather of five. Ron and his [...]
Check Out Our New Look!
If you haven't visited our website lately, it's likely you haven't seen some of our new features. We'll be featuring a unique feature in each newsletter. This issue the spotlight is on the Patient [...]
New Horizons Convenes in Vienna
On September 6th, Executive Director, Norman Scherzer and I attended the New Horizons GIST meeting in Vienna, Austria. Forty-three delegates, including GIST experts, advocacy groups, and patients/caregivers from 18 countries, gathered to share valuable [...]
Our Special Life Fest 2018 Bulletin Is Available!
Special Edition Life Fest 2018 Bulletin This year’s Life Fest conference was held July 13th–15th at the Downtown Miami Hilton in Florida. As we look back on the event and GIST Awareness Day, [...]
The Werners – Finding the New Normal Living with Wildtype GIST
Bryce Werner was a regular middle-schooler living an average 12-year-old life in Pennsylvania when suddenly everything was thrown wildly left of normal by a GIST diagnosis.
New Technology Developed Which Can Predict GIST Patient’s Response to Drugs with Amazing Accuracy
Researchers have developed a test that can accurately identify over 20% of GIST patients that are unlikely to respond to currently approved treatments. In addition, it can identify which patients need a higher dose [...]
LRG Discusses Importance of Real World Evidence in GIST Research at the FDA
On April 6th, 2018, Executive Director, Norman Scherzer; Data Analyst, Jerry Call; Real World Evidence Scientist, Yu Wang, and Patient Registry Director, Denisse Montoya, of The Life Raft Group, were invited to present at [...]
Salud con Datos – Partnering to Share Real World Data in Latin America
Over the past few years, The Life Raft Group has been strengthening its efforts in Latin America as it focuses on harnessing data to improve GIST patient outcomes. We have built strong relationships with [...]
Clinical Trials Transformation Initiative Member Meeting
As part of the Life Raft Group’s continuing mission to be actively involved in improving the quality of healthcare for cancer patients, I attended the Clinical Trials Transformation Initiatives (CTTI) member meeting in Rockville, Maryland [...]
Scottsdale Arizona hosts the first GDOL of 2018
The Life Raft Group held its first GIST Day of Learning 2018 in sunny Scottsdale, Arizona on March 10th. GDOLs are free, one-day programs that provide both education and support to the GIST community. [...]