Navigating Survivorship Care
NCCN’s Dr. Crystal Denlinger and Dottie Shead reviewed general principles of appropriate survivorship care and how to access and understand patient guidelines related to survivorship care.
What It Means To Be A GIST Mentor
US GIST Mentor Director, Santy DiSabatino, shares what having a Mentor means to the newly diagnosed and what being a GIST Mentor means to him and he makes an appeal for more volunteers to mentor LRG patients and caregivers.
A Thank You from Ukraine
Lidia Kornienko was searching for answers and when she reached out she found generous people willing to help assist her on the path to mutational testing and an effective treatment plan.
Partners Forever – Ira & Kay Stolzer
Our feature story is about a couple, Ira & Kay Stolzer, who have supported each other throughout their 41-year marriage and a GIST journey.
Clinical Trials Update – February 2022
In this summary, we continue highlighting recent clinical trials that are still recruiting in the U.S. which investigate potential treatments for GIST patients.
It’s Time to Tell the Stories – 2022
The Life Raft Group is celebrating our 20th anniversary as a nonprofit in 2022. For twenty years, our organization has been serving as a life raft for others navigating their GIST journeys.
Global Patient Involvement in Sarcoma Care
A recent paper published in Cancers by CTOS and SPAEN highlights major findings and proposes potential future steps in global sarcoma care.
La importancia del cuidador
Fundación GIST México GIST presentó 'La importancia del cuidador desde una perspectiva multidisciplinaria' en el Día Mundial del Cáncer.
Impact of L-carnitine on Imatinib-Related Muscle Cramps
Dr. Yoon-Koo Kang of the Asan Medical Center, Seoul, Korea, discusses the results of his team's study on the effect of L-carnitine in muscle cramps in GIST patients who are on imatinib.
Understanding sarcoma drug resistance one cell at a time
A new article published this month is presented by the University of Texas MD Anderson Cancer Center Department of Sarcoma Medical Oncology. Understanding Sarcoma Drug Resistance One Cell at a Time discusses that the focus in GIST research is moving from the current focus on just histology, proteomics, and tumor genetics enabled by tumor samples, cell lines and mouse models which are limited in rare cancers like SDH-deficient GIST.