Patient of the Month for August: Debi Granus
Patient of the Month: August As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 [...]
Patient of the Month: Santy DiSabatino
Our Patient of the Month for July is Santy DiSabatino. Here is his story: "I remember the first time I heard the word GIST. I was in the recovery room after having a colonoscopy and endoscopy done due to what was perceived as a stomach issue (not truly related to the GIST) and due for a ten-year colonoscopy.
Latin America Celebrates GIST Awareness Day 2018
Alianza GIST and Fundacion GIST Chile are going all out to raise awareness for GIST Awareness Day. Launched in 2014, GIST Awareness Day is a global effort to bring awareness about GIST, (Gastrointestinal Stromal [...]
The Werners – Finding the New Normal Living with Wildtype GIST
Bryce Werner was a regular middle-schooler living an average 12-year-old life in Pennsylvania when suddenly everything was thrown wildly left of normal by a GIST diagnosis.
New Technology Developed Which Can Predict GIST Patient’s Response to Drugs with Amazing Accuracy
Researchers have developed a test that can accurately identify over 20% of GIST patients that are unlikely to respond to currently approved treatments. In addition, it can identify which patients need a higher dose [...]
LRG Discusses Importance of Real World Evidence in GIST Research at the FDA
On April 6th, 2018, Executive Director, Norman Scherzer; Data Analyst, Jerry Call; Real World Evidence Scientist, Yu Wang, and Patient Registry Director, Denisse Montoya, of The Life Raft Group, were invited to present at [...]
Salud con Datos – Partnering to Share Real World Data in Latin America
Over the past few years, The Life Raft Group has been strengthening its efforts in Latin America as it focuses on harnessing data to improve GIST patient outcomes. We have built strong relationships with [...]
Clinical Trials Transformation Initiative Member Meeting
As part of the Life Raft Group’s continuing mission to be actively involved in improving the quality of healthcare for cancer patients, I attended the Clinical Trials Transformation Initiatives (CTTI) member meeting in Rockville, Maryland [...]
Scottsdale Arizona hosts the first GDOL of 2018
The Life Raft Group held its first GIST Day of Learning 2018 in sunny Scottsdale, Arizona on March 10th. GDOLs are free, one-day programs that provide both education and support to the GIST community. [...]
Believe in Hope – A GIST Story
This story is shared by Virginia Terrebonne, GIST Patient and LRG Member, and is part of our Faces of Courage series. My name is Virginia VanMeter Terrebonne. I am a 56-year-old female originally from [...]