Patient of the Month for October: Phil Honsey
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. It's Time to Tell the Stories! Phil Honsey shares his story.
Annual NORD Breakthrough Summit Tackles a Diversity of Rare Disease Issues
I was fortunate to be able attend the @NationalOrganizationforRareDisorders Rare Diseases + Orphan Products Breakthrough Summit (#NORDSummit) on October 17-18 in-person in Washington, DC via a full scholarship. During this highly anticipated [...]
The Emerging Role of Circulating Tumor DNA in Gastrointestinal Stromal Tumor
In this webinar, “The Emerging Role of Circulating Tumor DNA in Gastrointestinal Stromal Tumor”, Dr. Bialick discussed recent data looking at treatment outcomes based off KIT resistant mutations identified by circulating tumor DNA in patients with GIST.
Jess Ly Runs for the Cause – A Half Marathon for the LRG & GIST Awareness
During the pandemic and in September 2020, Jess Ly was diagnosed with GIST cancer. The Life Raft Group (LRG) community, her GIST friends, and the cancer community welcomed her with open arms. Now she's running a half marathon to raise awareness and funds for #GISTresearch!
GIST Specialist Dr. Neeta Somaiah Shares on Life as a Sarcoma Expert
LRG Medical Advisory Board Member and GIST Specialist Dr. Neeta Somaiah shares on her life as a sarcoma specialist.
Time To Tell The Stories – Donald Prestage
The Life Raft Group is celebrating our 20th anniversary as a nonprofit in 2022. Our Time to Tell the Stories features honor this legacy. GISTer Donald Prestage shares his story.
New Private Facebook Discussion Groups
The Life Raft Group is launching two new private Facebook Support Groups for patients and their caregivers. These two groups are designed to provide a safe forum to discuss specific concerns in a closed [...]
Global Advocacy News – SIMPOSIO ONCOLATINO
PIGA FERNÁNDEZ, LRG GLOBAL CONSULTANT, GLOBAL GIST DIR., EXEC. DIRECTOR FUNDACIÓN GIST CHILE I was invited to participate in this symposium organized by the Civil Society of Uruguay, together with almost 30 [...]
Cogent Biosciences GIST Mosaic at Life Fest 2022
Cogent Biosciences partnered with the LRG to create a GIST Mosaic mural to raise awareness for GIST, promote hope, and to honor our patient/caregiver/advocate community.
GIST DO IT Walk Gallery Life Fest 2022
This GIST DO IT Walk was held at Life Fest New Orleans 2022 to raise GIST Awareness and honor the memory of GISTer Ted Wolf - See the photo gallery of the walk.