Our theme for 2020 was Hope. 2020 presented a challenge to us all, but most especially to our patients and caregivers who are seeking to survive this rare cancer. In 2020, The Life Raft Group needed to provide a lifeline to our community, and to offer them hope in the form of increased support as we navigate the challenges of living in a COVID-19 world. #GISTHope
The National Organization for Rare Disorders (NORD) held a webinar on February 19th, 2021 for NORD member organizations as well as leaders and staff of nonprofits organizations involved in rare diseases including pharma, patients, caregivers, and advocates.
June 28th Awards Ceremony registration: https://livingrare.org/rare-impact-awards/ Dr. Jason Sicklick, Blueprint Medicines Among Honorees Released 2/23/21 by NORD The National Organization for Rare Disorders (NORD®) announced this year’s Rare Impact Award honorees. These outstanding [...]
Despite the challenges of Covid, the LRG has quickly developed new ways of working together virtually. We have kept afloat and served our community well during this dark year. These points of light show just how far we've come this year.
CTOS 2020 was conducted virtually from November 18th through the 21st, given the nature of our current environment, much of the content of the conference centered on COVID-19 and its impact on cancer patients, but there were a number of sessions and presentations and posters devoted to GIST as well.
Our theme for 2019 was Travel with Us on the Path to Survival. GIST patients and caregivers are on a journey, seeking to survive this rare cancer. Our mission is to walk with them on their journey, providing resources to help them not only survive, but thrive. In 2019, there was a strong research component to our efforts, promoting the importance of real world data and real world evidence to enhance traditional research
Subscribe to the LRG Newsletter 2023View December NewsletterView August Newsletter- GAD Highlights, Life Fest 2024 news & more!View April Newsletter 2022 View December 2022 Newsletter PDF Focus on GDOLs CTOS Sheds [...]
The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through [...]
Rare Disease Day is celebrated on the last day of February each year. The day is celebrated in order to bring attention to the general public and decision makers about rare diseases and how [...]
Advocacy continued to be an important focus in 2015. Our initiatives expanded globally, with the overall goal of assuring that all GIST patients have access to quality medical treatment. The LRG continued to forge [...]
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