Bryce Werner was a regular middle-schooler living an average 12-year-old life in Pennsylvania when suddenly everything was thrown wildly left of normal by a GIST diagnosis.
Subscribe to the LRG Newsletter 2023View December NewsletterView August Newsletter- GAD Highlights, Life Fest 2024 news & more!View April Newsletter 2022 View December 2022 Newsletter PDF Focus on GDOLs CTOS Sheds [...]
Many GIST patients have surgery to remove a primary tumor and do not have detectable metastases at the time of surgery. Adjuvant therapy refers to additional treatment given after a main mode of therapy [...]
The loss of a loved one leaves a hole in our lives that cannot be filled. Each individual deals with his or her own grief process in their own way, but all of us share [...]
According to a 2015 report by the National Alliance of Caregivers, approximately 43.5 million adults in the United States provided unpaid care to an adult or child in 2015. Caregivers come from diverse demographic [...]
The Society for Integrative Oncology (SIO) was developed to advance evidence based, comprehensive, integrative healthcare to improve the lives of people affected by cancer. The 12th Annual SIO Conference was held in Boston in [...]
It has been a long journey since that day Melinda and I walked out of my Dallas oncologist’s office in May, 2000 knowing that I had a rare, then untreatable cancer. Now, it has [...]
As the cost of cancer treatment rises, so does the anxiety level of those diagnosed. The University of Chicago has developed a tool to assess the financial pain of cancer treatment. In the July issue of [...]
Charlie Burke has developed a thick skin when it comes to cancer. After surviving bouts with colorectal, thyroid and skin cancers, he was well acquainted with the routine of doctor’s appointments, hospital visits, surgeries and regular treatment that accompany disease by the time a GIST tumor was discovered in his colon. However, as any of our members will tell you, GIST comes with its own unique lexicon to master and set of challenges to overcome.
The 12th Pediatric and Wildtype GIST Clinic was held May 21 to 23, 2014 at the National Institutes of Health in Bethesda, Maryland. Coordinated by Dr. Sosipatros Boikos, and based out of the NIH Pediatric Oncology Department under the direction of Dr. Lee Helman, the Clinic is collaboration between clinicians and researchers to collect data, investigate and develop treatment for GIST patients who do not have either c-KIT or PDGFRA mutation.
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