Patient of the Month for March: Cynthia Pearce
As part of our Faces of Courage Series, we are featuring a patient story on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each year [...]
National Integrated Cancer Control Act Approved in the Philippines
WE DID IT! National Integrated Cancer Control Act is Approved! Contributed by Rod Padua / President, Touched By Max PHILIPPINES In a country of 104 million, there are approximately 141,021 new cancer cases in [...]
Survive & Thrive with GIST
Ten Tips for Life with a Rare Disease The challenges of living with GIST are many - here are our top ten tips to navigate this journey toward thriving and surviving. 1. Get a [...]
In Memoriam – Erlinda Adajar
Erlinda (Linda) Adajar, loving and dedicated wife, mother, grandmother, sister and friend, passed away on December 24, 2018 at Memorial Sloan Kettering Hospital in NYC. She was 77 years old. Linda was born on [...]
Global Representative Spotlight – Florence Thwagi, Kenya
My Journey with GIST My name is Florence Thwagi, and I am 53-years-old. I am an Executive Board Member of Henzo Kenya, an advocacy group that creates awareness and support GIST patients in Kenya. [...]
State Leader Spotlight – Wendi Lax
Wendi Lax is our wonderful state leader for Maryland. She is currently residing in Maryland, where she is helping the Life Raft Group create unity among the local patients and caregivers. For many years, [...]
Holiday Campaign 2018 Update
Each one of our members has a unique story to tell, but they all reflect the intrinsic courage of those who face the challenges of cancer head on, with dignity, strength and passion for [...]
Pediatric & SDH-Deficient GIST Consortium Update
Setting the Pace for the Future In July of 2018 at Life Fest, The Life Raft Group brought together a team of pediatric & SDH-deficient GIST experts for a symposium focused on this rare [...]
A Conversation with Breelyn Wilky, M.D.
Dr. Breelyn Wilky answering questions on a panel of GIST experts at Life Fest Miami, 2018. Colorado, Clinical Trials & Immunotherapy Dr. Wilky, Director of Sarcoma Translational Research at the University of [...]
Crossing the Finish Line
I never thought that I would be sitting at the same table with Senators from my country while voting for a law that will potentially dramatically change the lives of cancer patients in Chile. [...]