GIST is a Marathon, Not a Sprint
Overall survival in GIST patients has improved dramatically over the years. In 2019, the median Overall Survival (OS) is over 12 years when all Life Raft Group registry patients are combined. About 80% of [...]
The Life Raft Group Research Model – LRG Science
PDF is available of LRG Science to print here. Real World Evidence in Action Although targeted medicine has brought about immense progress in cancer treatment, there are still enormous challenges [...]
A Lively Liver: Monitoring Liver Health with GIST
The liver, located under the right rib cage, is the body’s largest internal organ and acts as a factory, regulating digestion, blood content, nutrient production and storage. The liver processes all that funnels through [...]
Patient of the Month for February: Kirk Clark
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
Patient of the Month for January: Theresa Rogers
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
Faces of Courage – Eve Evidon
My GIST Journey In early December 2008, I acknowledged that my stomach was not feeling normal. I felt better when I skipped meals and instinctively knew something was seriously wrong. I met with my [...]
Coping for Caregivers – Preparing for a Hospital Stay
Caring for a loved one is filled with day-to-day stressors. But what about the stressors that are out of the ordinary? Any hospitalization is stressful. Preparing for the hospital to the extent possible can [...]
Chile Cancer March Brings Change – Advocacy in Action!
Patients and Caregivers March! On December 4, 2018, President Sebastián Piñera, of Chile, signed the National Cancer Plan 2018 – 2028 and the National Cancer Law. LRG Global Consultant and Executive Director of Fundación [...]
New in SDH-Deficient Research – The Paraganglioma* Preclinical Project
The Pediatric SDH-Deficient GIST Consortium, which was launched at the Biden Cancer Summit, consists of an impressive team of researchers, clinicians, academics, and patient advocacy groups. A member of our consortium, Dr. Joshua D. [...]
Michigan GIST Day of Learning
Dr. Baker presenting at Michigan GDOL The Life Raft Group held its first GIST Day of Learning (GDOL) in Michigan on October 27th in Ann Arbor. GDOLs are free, one-day programs that [...]