Vitrakvi Approved
New Drug Approved for Patients with Rare Gene Fusion By Sara Rothschild, MPH, Vice President, Program Services & Jerry Call, Data Analyst The Food and Drug Administration granted accelerated approval on November 26th to [...]
An Exciting Time for GIST Research
Left to right: Laura Occhiuzzi, Pete Knox, Alyssa O’Driscoll, Sarcoma Alliance, Annie Achee, National LeioMyoSarcoma Foundation, Denise Reinke, SARC, and Mitch Achee, National LeioMyoSarcoma Foundation. GIST Research from CTOS 2018 A web-based [...]
Global Representative Spotlight – Verónica Armand Ugón, Uruguay
I am 45 years old and I live in Tarariras, a small city of Colonia, Uruguay. I am married and I have three wonderful children: Matías (18 years old), Tomás (15 years old) and [...]
GIST Resolutions
With the start of a new year, there is an opportunity to make positive changes. Cancer patients face dramatic change in their lives, and chances are they have already experienced a time of reflection [...]
Overcoming the Holiday Blues
Everywhere you turn, the sights and sounds of the holiday season assail you. Before the Halloween candy is sorted and the Thanksgiving turkey is cold, we are reminded of what some call “the most [...]
Night to Fight Cancer 2018
The 15th annual “Night to Fight Cancer” (NTFC) benefiting the Life Raft Group’s research programs took place November 7th, 2018 at Midtown Loft and Terrace. Jerry Cudzil, LRG Board President, was joined again by [...]
Searching for Hope
In this article, Mom Glenda Swinbourn of Australia shares the story of her son Mitchell, a 13-year old with Carney-Stratakis Dyad. It is for patients like Mitch that the Pediatric & SDH-Deficient GIST Consortium was founded.
Patient of the Month for December: Wanda Sebestin
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
Faces of Courage
For our 2018 Holiday Campaign our theme is you. The Faces of Courage. We will be featuring some stories throughout the holiday season that show the many faces of courage. We also want our [...]
Faces of Courage Holiday Campaign Launches on #GivingTuesday
Today is Giving Tuesday. #GIVINGTUESDAY is an opportunity to come together as a community to make an impact on the lives of GIST patients by helping to ensure their survival. It is a chance [...]