Patient of the Month for November: Greg Crow
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
LRG Webcast: What is SDH, How Is It Related to Cancer, and What Can Be Done About It?
SDH is a protein that is based in the mitochondria. Its loss causes a major energy and metabolic crisis. Despite this, some types of cells can 'benefit' from the loss of SDH and continue to [...]
Marching for the National Cancer Law in Chile
Our Global Consultant, Piga Fernández, Executive Director of Fundación GIST Chile has asked us to help support the passage of the National Cancer Law in Chile. In 2020, cancer will be the number one cause of death [...]
The Healing Power of Adventure
A cancer diagnosis at any age is life-changing, daunting, and difficult. It can be especially challenging for young adults, people ages 18-39, who are dealing with cancer while also navigating college, first careers, new relationships, starting families, and other young adult milestones. Every year, 70,000 young adults are diagnosed with cancer, and that doesn’t include those diagnosed as children who are now young adult survivors and thrivers. As a young adult with cancer, I know it can be hard finding other people who “get it.”
The Magic of Clinical Trial Math
How to Make 2/3 = 1 (100%) In a recent discussion about the frequency of mutations in GIST, we noted that the most common mutation is KIT exon 11, which makes up about 2/3 [...]
The Pediatric & SDH-Deficient GIST Consortium
Our Commitment to the Biden Cancer Initiative We are excited to launch an innovative initiative to strengthen and advance research for effective treatments of a rare subset of Gastrointestinal Stromal Tumor (GIST) patients, who [...]
Biden Cancer Summit Highlights
On September 21st, 2018, Vice President Joe Biden and Dr. Jill Biden convened a national Biden Cancer Summit, with the anchor event in Washington D.C., and more than 450 Community Summits held where people [...]
Elsie María Hernández Saborío – In Memoriam
A tribute by Michael Josephy, LRG Contributor My dear wife, Elsie María Hernández Saborío, passed away August 7th after a long battle with GIST. I miss her greatly. Elsie was born and raised in [...]
The Life Raft Group – Part of the Conversation at CTTI
The Clinical Trials Transformation Initiative (CTTI) Steering Committee gathered in Washington, D.C. on September 25th to discuss how clinical trials fit within scientific strategies to address public health priorities, review the portfolio of initiatives, [...]
The LRG Welcomes New Board Member
Ron & Kim Agypt The Life Raft Group welcomed Ron Agypt to the Board this month. Ron is a retired insurance executive, father of three, and grandfather of five. Ron and his [...]