GIST DO IT Walk 2018 Gallery
Our first ever GIST DO IT Walk took place on the morning of July 15, 2018 at Margaret Pace Park in Miami, Florida. Patients, caregivers, doctors, friends, families, and virtual participants walked to raise funds [...]
Life Fest 2018 Gallery
The Life Raft Group was proud to celebrate the 9th anniversary of our biennial Life Fest conference. At this unique event, patients and caregivers have the opportunity to gather for a weekend of camaraderie [...]
4th Anniversary of Fundación GIST Chile
Saturday August 11, in Fundación GIST Chile celebrated their Fourth Anniversary and the end of their GIST Awareness Campaign: "HAGÁMOSLO POSIBLE" with two panel discussions of different health stakeholders from Chile.
SoCal Support Group Meeting for GISTers
Dina Wiley, SoCal Group Leader On August 11, 2018, a group of GISTers in Southern California gathered informally to share knowledge, resources, and personal stories about their journeys with this rare disease. [...]
Biden Cancer Community Summit – Get Involved!
The LRG is collaborating with the Biden Cancer Initiative to promote the Biden Cancer Community Summit which will be held on September 21st, 2018, in Washington, D.C. Vice President Joe Biden and Dr. Jill [...]
Mutational Testing and Genetics
So, I’ve been told that I have GIST! Life changes suddenly and profoundly when you receive a cancer diagnosis. It’s normal to experience a state of shock, but there is a practical need to [...]
Life Fest Pediatric/SDH Deficient GIST Track Provides Wealth of Information
The 2018 Life Fest Meeting was held in Miami on July 13 - 15 and was attended by 140 patients, friends, family and caregivers. This was a truly international event, with participation from 20 [...]
Real World Evidence in Action: The LRG Research Model
Although targeted medicine has brought about immense progress in cancer treatment, there are still enormous challenges regarding patient survival. Randomized clinical trials (RCTs) driven by lab-based research have been the gold standard for identifying new [...]
Patient of the Month for August: Debi Granus
Patient of the Month: August As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 [...]
Patient of the Month: Santy DiSabatino
Our Patient of the Month for July is Santy DiSabatino. Here is his story: "I remember the first time I heard the word GIST. I was in the recovery room after having a colonoscopy and endoscopy done due to what was perceived as a stomach issue (not truly related to the GIST) and due for a ten-year colonoscopy.