The Life Raft Group Celebrates 15 Years of Accomplishments
The Life Raft Group became a formal non-profit on June 10, 2002. Begun as a grass roots effort by a group of men and women with a deadly cancer in 2000, by the year [...]
2015 Annual Report – Research
In 2015, we continued to commit funding for our research team in spite of a challenging fundraising landscape. Our research team held a two-day meeting at the Cleveland Clinic, outlining two key projects: A [...]
How to be a GIST Hero: Donating Tissue for GIST Research
For patients who have recently been diagnosed with cancer, donating a tissue sample is probably the last thing on their minds. But it’s an important consideration. Researchers often rely on donated tissue to advance [...]
On The Road with the LRG: NCATS Presentation
On Tuesday, January 12, a small delegation of LRG staff journeyed to Washington, DC, to make a presentation to the executive leadership of the National Center for Advancing Translational Science (NCATS). The team from [...]
Clinical Registry Study Planned by ASCO
American Society of Clinical Oncology (ASCO) is planning its first-ever clinical registry study, the Targeted Agent and Profiling Utilization Registry (TAPUR). ASCO plans should increase patient access to off-label drugs and match patients with [...]
Life Raft Group’s 2014 Annual Report
2014 Annual Report Overview This was a year of challenges and triumphs for the Life Raft Group as we continued our mission to find a cure for GIST, and to provide research, education, support and [...]
The Role of Big Data in Curing Cancer
A recent article by Lindsey Cook on the US News and World Report blog discusses the value of big data, the repositories of health information that are becoming more commonplace in healthcare institutions and organizations. [...]
IRBs and the LRG Patient Registry
Institutional Review Boards (IRBs) are the core of the well-established U.S. system for the protection of human research participants.
Your GISTory and Why it is Important!
Having your GISTory or medical summary up to date and handy when faced with a medical emergency, is crucial to have on hand, when making decisions on how to proceed with your care.
Distribution by State of U.S. GIST Patients in LRG Patient Registry
We have put together a map showing the distribution of GIST patients in the U.S. who are living with GIST in the LRG Patient Registry by state. The map shows how geographically diverse the Patient Registry is, with patients spread throughout the country.