We stand with Ukraine. We stand with cancer patients.
International access to cancer treatment can be challenging. Access to effective treatment in a time of war provides a an even more daunting challenge.
A Thank You from Ukraine
Lidia Kornienko was searching for answers and when she reached out she found generous people willing to help assist her on the path to mutational testing and an effective treatment plan.
Global Patient Involvement in Sarcoma Care
A recent paper published in Cancers by CTOS and SPAEN highlights major findings and proposes potential future steps in global sarcoma care.
New Horizons – Best Practices: How to Advocate for Better Access
Sarah McGoram, Carolina Goič, Florence Thwagi, Tania Carolina Diaz presented Best Practices: How to Advocate for Better Access at New Horizons 2021.
New Research Lab Dedicated to GISTer
Dr. Jason Sicklick of Moores Cancer Center at UC San Diego dedicated his new research lab to the memory of GISTer Merak Melikian Hatounian.
Australian GIST Advocates Overcome Payer Obstacles Concerning Qinlock
Australian GIST Advocates Overcome Payer Obstacles Concerning Qinlock. 4th line drug approval was approved! GISTer Sarah McGoram shares the news.
Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021
Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021.
The Eyes Don’t See What the Mind Doesn’t Know – GIST Education in México
Rodrigo Salas & Berenice Carbajal-López of Fundación GIST México illustrate how this organization is working to spread GIST awareness and education.
GIST Awareness Day 2021
Despite all the work done by our amazing members and friends to date there is still a huge lack of education and awareness that exists within the medical community and general public about GIST. [...]
New Horizons GIST Presents Webinar on Mutational Testing for Global Community
This New Horizons GIST webinar is for GIST patients around the world. Hosted by SPAEN, this presentation focuses on mutational testing as a guide for the right therapy.