Countdown to Rare Disease Day 2017
Rare Disease Day is celebrated on the last day of February each year. The day is celebrated in order to bring attention to the general public and decision makers about rare diseases and how [...]
Seminar for Chilean Patient Organizations Aligns Common Goals
On November 26, 2016, patient advocacy organizations in Chile came together at the School of Medicine at the University of San Sebastian in Santiago, Chile for a seminar entitled "Clinical Studies, Clinical Guidelines and [...]
LRG Advocacy Efforts at Home and Abroad
View our SideEQ article in our October issue The week of October 16 was a busy one for the Life Raft Group’s advocacy efforts. The week began with a trip to the [...]
LRG Networking at Partnering for Cures
Pediatrician and breast cancer survivor, Janet Sollod, gives a touching Time=Lives talk, "Approaching the Abyss." LRG staff members, Michelle Durborow and Erin Kristoff attended the Partnering for Cures 8th Annual Meeting hosted [...]
Night to Fight Cancer Event Raises $130,000
The thirteenth annual “Night to Fight Cancer” event to benefit The Life Raft Group’s research programs was an overwhelming success. Held at the Midtown Loft and Terrace on October 13, 2016, the event provided [...]
CTOS Provides International Networking Opportunities
Executive Director Norman Scherzer traveled to Lisbon, Portugal in November to attend the 21st annual meeting of the Connective Tissue Oncology Society (CTOS). CTOS is an annual conference which has grown since its inception [...]
Fundación GIST Chile GIST Awareness Day Video
On the GIST Awareness Day, Fundación GIST Chile wants to be the voice of all people who require that Health Systems cover the treatments that we need.
NIH Pediatric and Wildtype GIST Clinic
The 14th Pediatric and Wildtype GIST Clinic was held at the National Institute of Health (NIH) in Bethesda, Maryland on June 15-17, 2016. What follows is a summary of the discussion held during the [...]
Water of Life: A Night to Remember
The second annual Water of Life whisky fundraiser was a night to remember! This year’s event, hosted by Dr. Matt Lurin to benefit the Life Raft Group, was held at Midtown Loft & Terrace [...]
Team J’s Ride Across America (RAA) 2016
Members of Team-J's Charity Bicycling Team are planning to bicycle in Ride Across America in support of two causes; Hydrocephalus Awareness - www.hydroassoc.org GIST Pediatric Cancer Awareness - www.liferaftgroup.org Donate Now TEAM-J's local [...]