News

Dave Safford shares his list of happiest moments since GIST and those still to come

Recently, LRG Board Member Dave Safford decided to sit down and think about all of the good fortune that has come into his life since being diagnosed with cancer. We liked his list so much we decided to share it so that everyone in the GIST community can see a story of positivity and hope.

By |2019-09-20T13:13:38-04:00February 1st, 2013|Member Stories, News|

LRG Sets GDOL Miami Date for March

The second annual GIST Day of Learning will be held on March 23, 2013. This year we are privileged once again that Dr. Jonathan Trent of Sylvester Cancer Center in Miami has agreed to host our gathering and we are honored to hear what he has to say.

By |2018-07-23T10:46:26-04:00February 1st, 2013|Events, GIST Education, News, Patient Support|

LRG launches new & improved website, convenient mobile app & online store!

After two years of planning, toiling, and more planning, the LRG unveiled its redesigned website on January 1 at our same web address: liferaftgroup.org. Finding the balance between providing life-saving information and explaining GIST in a concise, understandable way, has always been a struggle for the Life Raft Group.

By |2019-09-20T13:17:10-04:00February 1st, 2013|Fundraising, Newly Diagnosed, News, Patient Registry|

LRG & colleagues make their mark on 17th annual CTOS meeting in Prague

Representatives from the Life Raft Group recently traveled to Prague, Czech Republic to attend the annual Connective Tissue Oncology Society (CTOS) meeting. CTOS is an international group comprised of physicians and scientists with a primary interest in the tumors of connective tissues.

By |2019-09-20T13:18:16-04:00February 1st, 2013|Events, News|

Patients Face Numerous Obstacles In Quest For Life-Saving Treatment

“It was such a frustrating time. It was awful,” Linda says, recalling how doctors had recommended she give Glaxo-SmithKline’s drug Votrient a shot but was unable to get Jessica’s insurance company to cover it despite appeals documented by GIST specialists.

By |2019-04-18T11:51:54-04:00February 1st, 2013|Advocacy, Coping with GIST, Drug Treatment, News|
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