New Horizons – Utilization of Real World Evidence Among Different Stakeholders
"Utilization of Real World Evidence Among Different Stakeholders" presented by Norman Scherzer at New Horizons 2017.
Global GIST Advocates Convene at LRG Headquarters
The Life Raft Group had the pleasure of hosting the global New Horizons GIST meeting this year in our Wayne, New Jersey office. This international meeting traditionally gathers global GIST advocates with the shared [...]
Coping With Grief and Loss
The loss of a loved one leaves a hole in our lives that cannot be filled. Each individual deals with his or her own grief process in their own way, but all of us share [...]
Social Media Helps Rescue Croatian Patient
Danijel Romic with his 2 children Danijel Romic, a 34-year old GIST patient from Crikvenica in Croatia, was faced with a challenge. Diagnosed with GIST in 2014, he did not have access [...]
NIH Clinic Combines Research, Knowledge, and Hope
I had the pleasure of attending the 15th Pediatric and Wildtype Clinic along with Becky Owens from GIST Support International as patient advocates. The Clinic was held at the National Institute of Health in [...]
In the beginning…Patient-reported outcomes
Patient-reported outcomes is a buzz-phase that we hear a lot these days. At the Life Raft Group, I was recently in a meeting where we were discussing patient-reported outcomes, the LRG registry and patient-powered [...]
Dana Pearson – “Until We Meet Again”
We lost a great light in the Life Raft Group with the passing of Dana Pearson back in June. Dana touched the lives of others in a profound way, always smiling, always reaching for life-affirming [...]
LRG attends Partnering for Cures in Boston
I recently traveled to Boston, Massachusetts to attend Partnering for Cures. This is a meeting sponsored by Faster Cures that brings together patient advocates, scientists, policy-makers, and other leading members in the industry who [...]
In Loving Memory of Beverley Lynn Burrows
Life Raft Group Canada is mourning the loss of our dearly loved Vice-President, Lynn Burrows. Lynn was always a light-hearted and optimistic woman, in spite of her decade of struggle with GIST. Her smile could [...]