#ShowUsYourRare for GIST Awareness Day!
Last year’s inaugural GIST Awareness Day was a huge success, and we know with your help 2015 will be even bigger and better! This year, we’re celebrating GIST Awareness Day by creating a photo mosaic [...]
Jeff Davis: Fan of Miracle Comebacks
Jeff Davis - West Coast Florida Back in 1969 the New York Mets, a struggling team at the time, pulled off one of the most amazing comebacks in baseball. You could say [...]
Fatigue Reduction: Moving Towards a Better Future
As one of the most common side-effects of Gleevec, Sutent and Stivarga, fatigue is a condition that many GIST survivors are intimately acquainted with. The National Comprehensive Cancer Network defines cancer-related fatigue as “a [...]
Love is at the Heart of Henzo Kenya
As the Life Raft Group continues to grow globally, we will highlight our international friends in each newsletter issue. In this interview with Ferdinand Mwangura, Chairman of Henzo Kenya, we discover how the seeds [...]
Study Indicates Use Of Adjuvant Imatinib Therapy For GIST Increasing
A recent study published in the American Journal of Clinical Oncology found that the use of adjuvant systemic therapy with imatinib for GIST has increased significantly over time, and that patients treated with the therapy [...]
Virtual Tumor Board Expands to Adult GIST Cases
The Life Raft Group is excited to announce that our Virtual GIST Tumor Boards have been so successful within the global Pediatric GIST community that we are now expanding our applications to review adult GIST [...]
“Water of Life” Will Flow at LRG Event
The Water of Life event is the first annual whisky fundraiser hosted by LRG member, Dr. Mathew J. Lurin (co-founder of the Whisky Nerds). The word whisky (or whiskey) comes from the Gaelic uisce/uisge, [...]
Advocacy in Chile Moves Forward: an Update
New steps have been taken in Chile that will benefit patients who need high cost treatments. Piga Fernández, LRG Global Consultant in Chile, together with representatives of 26 patient organizations has been working on [...]
LRG State Leaders Connect in First Virtual Meeting
On Wednesday, February 11, the Life Raft Group’s state leaders had their first opportunity to gather virtually and to discuss the best strategies for bringing together and building a support community for patients and [...]
Joyce Elaine O’Shea: Friend to All
Joyce Elaine O’Shea, aged 61, passed away at home in Aptos, California on Thursday, February 26, 2015. She courageously fought cancer, never losing her spirit of faith. Born September 13, 1953 in San Jose, [...]