Holiday Campaign 2018 Update
Each one of our members has a unique story to tell, but they all reflect the intrinsic courage of those who face the challenges of cancer head on, with dignity, strength and passion for [...]
Pediatric & SDH-Deficient GIST Consortium Update
Setting the Pace for the Future In July of 2018 at Life Fest, The Life Raft Group brought together a team of pediatric & SDH-deficient GIST experts for a symposium focused on this rare [...]
A Conversation with Breelyn Wilky, M.D.
Dr. Breelyn Wilky answering questions on a panel of GIST experts at Life Fest Miami, 2018. Colorado, Clinical Trials & Immunotherapy Dr. Wilky, Director of Sarcoma Translational Research at the University of [...]
GIST is a Marathon, Not a Sprint
Overall survival in GIST patients has improved dramatically over the years. In 2019, the median Overall Survival (OS) is over 12 years when all Life Raft Group registry patients are combined. About 80% of [...]
Overcoming the Holiday Blues
Everywhere you turn, the sights and sounds of the holiday season assail you. Before the Halloween candy is sorted and the Thanksgiving turkey is cold, we are reminded of what some call “the most [...]
Elsie María Hernández Saborío – In Memoriam
A tribute by Michael Josephy, LRG Contributor My dear wife, Elsie María Hernández Saborío, passed away August 7th after a long battle with GIST. I miss her greatly. Elsie was born and raised in [...]
The LRG Welcomes New Board Member
Ron & Kim Agypt The Life Raft Group welcomed Ron Agypt to the Board this month. Ron is a retired insurance executive, father of three, and grandfather of five. Ron and his [...]
Check Out Our New Look!
If you haven't visited our website lately, it's likely you haven't seen some of our new features. We'll be featuring a unique feature in each newsletter. This issue the spotlight is on the Patient [...]
Our Special Life Fest 2018 Bulletin Is Available!
Special Edition Life Fest 2018 Bulletin This year’s Life Fest conference was held July 13th–15th at the Downtown Miami Hilton in Florida. As we look back on the event and GIST Awareness Day, [...]
Global Spotlight – Introducing Two New Global Representatives
Two new representatives have join the LRG community, providing resources and support to patients in Russia, and Kenya. Dmitry Bukhtenkov Dmitry Bukhtenkov is the newest LRG Global Representative for Russia. Born in [...]