GIST Education

Yoga May Help in Relieving Fatigue for Cancer Patients

A recent study funded by the National Center for Complementary and Alternative Medicine found that yoga may help breast cancer survivors to cope with fatigue. Cancer patients experience fatigue as a side effect of [...]

By |2020-03-10T10:54:16-04:00September 29th, 2014|GIST Education, News, Patient Support|

Resources For Cancer Patients And Caregivers

Comprehensive resources for cancer patients and caregivers can be found on Patient Resource’s website. This is valuable information, not only for GIST patients, but also for those who may have friends and loved ones with other diagnoses.

By |2018-09-12T16:11:54-04:00August 29th, 2014|Coping with GIST, GIST Education, News, Patient Support|

Second Meeting of LRG-NIH Virtual GIST Tumor Board Now Accepting Applications

The Life Raft Group, in partnership with the National Institutes of Health, is pleased to announce that applications are currently being accepted for the second meeting of the NIH-LRG Virtual GIST Tumor Board.

By |2019-09-20T14:42:35-04:00August 21st, 2014|Advocacy, GIST Education, News, Research|

Here Comes the Sun: Skin Protection Tips for GIST Patients

As wonderful as the sun feels, especially after the harsh winter many of us experienced, its effects are cause for concern, especially for patients already challenged with skin issues. Keep reading to learn some skin protection tips for GIST patients.

By |2019-09-20T14:48:22-04:00August 7th, 2014|GIST Education, News, Patient Support|

Living with ostomy: One LRG member’s story

Charlie Burke has developed a thick skin when it comes to cancer. After surviving bouts with colorectal, thyroid and skin cancers, he was well acquainted with the routine of doctor’s appointments, hospital visits, surgeries and regular treatment that accompany disease by the time a GIST tumor was discovered in his colon. However, as any of our members will tell you, GIST comes with its own unique lexicon to master and set of challenges to overcome.

By |2019-09-20T11:24:54-04:00July 2nd, 2014|Coping with GIST, GIST Education, Member Stories, News, Surgery|

Expert patient training program a success

The LRG is proud to announce that the inaugural class of our GIST Expert Patient Training Program has been completed. The class, which was open to GIST patients, caregivers, and other members oaf the extended GIST community, was comprised of just under 20 students and was a comprehensive offering designed to help participants better understand the science behind GIST.

By |2019-09-20T11:26:37-04:00July 2nd, 2014|GIST Education, News|

Alianza GIST meets in Zurich, Switzerland

Alianza GIST members from Argentina, Bolivia, Brazil, Colombia, Chile, Cuba, Venezuela, Guatemala, Mexico, and Spain joined representatives from the Life Raft Group in Zurich, Switzerland from May 14 to 17. The major focus of the meeting was to develop a new methodology in order to move towards Alianza GIST autonomy.

By |2019-09-20T15:49:32-04:00July 2nd, 2014|Advocacy, Events, GIST Education, Global, News, Patient Support|

New Horizons Takes Place in Zurich, Switzerland

With the beautiful mountains of Switzerland and Lake Zurich in the background, 44 GIST Patient representatives from 28 countries and 32 patient groups/organizations convened in Zurich for the New Horizons GIST meeting from May 14-17, 2014.

By |2019-09-20T15:49:04-04:00July 2nd, 2014|Advocacy, Events, GIST Education, Global, News|

NIH Clinic provides support and a healthy dose of fun

The 12th Pediatric and Wildtype GIST Clinic was held May 21 to 23, 2014 at the National Institutes of Health in Bethesda, Maryland. Coordinated by Dr. Sosipatros Boikos, and based out of the NIH Pediatric Oncology Department under the direction of Dr. Lee Helman, the Clinic is collaboration between clinicians and researchers to collect data, investigate and develop treatment for GIST patients who do not have either c-KIT or PDGFRA mutation.

By |2019-09-20T11:29:57-04:00July 2nd, 2014|Advocacy, GIST Education, News, Patient Support, Pediatric GIST|

Introducing the NIH-LRG Pediatric GIST Virtual Tumor Board

The Life Raft Group is excited to announce that we will be partnering with the National Institutes of Health to launch the first Pediatric GIST Virtual Tumor Board!* Due to severe funding cuts that reduced [...]

By |2019-04-05T11:04:10-04:00April 11th, 2014|GIST Education, News, Pediatric GIST, SDH-Deficient GIST|
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