News

Q&A with SDH Panel of Experts Yields Promise for the SDH-deficient GIST Community

The Life Raft Group celebrated GIST Awareness Day 2021 by holding an virtual, interactive Q&A session for SDH-deficient GIST patients with leading experts in the field.

By |2021-07-29T11:58:30-04:00July 29th, 2021|News, Research, SDH-Deficient GIST|

‘It’s Time’ to Continue Our Message About Biomarker Testing!

So far in 2021, our 'It's Time' campaign has emphasized twelve important points concerning biomarker testing and the important role it plays in a GIST patient's journey. We will keep the momentum going with patient stories, webinars, and resource materials.

By |2021-09-27T14:30:56-04:00July 22nd, 2021|Mutational Testing, News|

Executive Director Scherzer Speaks at Advocacy Seminar on Chronic Disease Day

On Wednesday, July 14th, the LRG's Executive Director Norman J. Scherzer joined a renowned group of speakers for the Chronic Disease Day Advocacy Training Session which was presented live on Facebook by Good Days [...]

By |2021-07-21T10:02:18-04:00July 21st, 2021|News|

It’s Time: The Life Raft Group Biomarker Testing Campaign – It’s Time to Save Lives!

Biomarker testing is an opportunity to improve and optimize treatment. In this post, GISTer Bill Borwegen shares his story and we share how you can help save lives.

By |2021-09-27T14:32:40-04:00July 1st, 2021|Mutational Testing, News|

The Eyes Don’t See What the Mind Doesn’t Know – GIST Education in México

Rodrigo Salas & Berenice Carbajal-López of Fundación GIST México illustrate how this organization is working to spread GIST awareness and education.

By |2021-06-30T11:53:11-04:00June 30th, 2021|Advocacy, Global, News, Newsletter|

Spotlight on LRG Global Representatives – Nandini Dabbir, India

The newest GISTer to join the ranks of LRG Global Representatives is Nandini Dabbir of Hyderabad, India. She is a the Friends of Max City Chapter Leader & GIST Advocate working with the LRG to support GIST patients on their journey.

By |2021-06-30T10:50:44-04:00June 30th, 2021|Global, News, Newsletter|

Rare Diagnosis Fosters a Passion for Biomarker Testing & Self-Advocacy

GISTer Bill Borwegan shares his inspiring GIST journey illustrating the importance of biomarker/ mutational testing and self-advocacy as a rare disease patient.

By |2021-06-29T11:57:41-04:00June 29th, 2021|Member Stories, News, Newsletter|
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