Life Raft Group Participates in Virtual CTOS Conference
The annual meeting of CTOS (Connective Tissue Oncology Society) will be held virtually this year due to the global pandemic.
Recognizing Our Women in Sarcoma Gala Honorees 2020
The Women in Sarcoma Gala, the culmination of the Women in Sarcoma series for 2020, will recognize medical professionals who have made an exceptional difference in the lives of GIST patients and their families. In addition, we will also honor two amazing sarcoma patients who have met the challenge their disease presented and have gone above and beyond to make a difference in the rare disease community.
Honoring the Memory of Nikki Morales – the Women in Sarcoma Gala
Join us for the first virtual annual Women in Sarcoma Gala in loving memory of Nikki Morales. Nikki Morales was a patient advocate, philanthropist, public speaker, volunteer, and an inspiration for so many within the sarcoma community.
In Memoriam – Dr. Nikhil Guhagarkar
Dr. Nikhil Guhagarkar found opportunities to balance life as a father, husband, medical professional, patient advocate and cancer survivor.
How Can B12 Help GIST Patients?
Fatigue is a common symptom experienced by GIST patients. Many factors may cause or contribute to lethargy, such as insomnia, malnutrition, iron deficiency to name a few, but a vitamin B12 deficiency in particular could be the root of the issue for some GIST sufferers.
Highlighting Exceptional Professionals in the Sarcoma Field
The Life Raft Group has developed the Women in Sarcoma program in recognition of the many women sarcoma specialists that engage with our organization and our patient and caregiver community.
GIST & Creativity – Jacqui Bartlett, Photographer & GISTer
Artistic expression is an important psychosocial activity. In this two-part series, these GISTers - professional and amateur creatives, share their stories. This is Jacqui Bartlett's story.
Australian GISTers Volunteer as LRG Country Liaisons
The LRG is pleased to welcome Shari Reid and Dr. Amy Kenworthy as country liaisons supporting GIST patients in Australia.
A Blessing from GIST – Super Max & Bryce
Professor Amy Kenworthy's GIST journey includes inspiring her son Bryce to help children in treatment for cancer. Bryce, at nine years old, decided to take action and created a project in 2016 called Super Max & Bryce.
Caregiver of the Month for November: Stephanie De Jong
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Stephanie De Jong shares her story.