All patients with SDH-deficient GIST (stains SDHB negative) are advised to see an SDH-deficient GIST specialist. Oncologists and/or surgeons that specialize in this rare disease are listed below. For full list of GIST Specialists [...]
PDF is available of LRG Science to print here. An oncologist in Chennai, India, 8,366 miles away from the Life Raft Group’s Wayne, New Jersey office, is running out of treatment [...]
Setting the Pace for the Future In July of 2018 at Life Fest, The Life Raft Group brought together a team of pediatric & SDH-deficient GIST experts for a symposium focused on this rare [...]
New Drug Approved for Patients with Rare Gene Fusion By Sara Rothschild, MPH, Vice President, Program Services & Jerry Call, Data Analyst The Food and Drug Administration granted accelerated approval on November 26th to [...]
WAYNE, N.J. and WASHINGTON, D.C. (September 21, 2018) - The Life Raft Group announces at the Biden Cancer Summit a new initiative to strengthen and advance research for effective treatments of a rare subset of [...]
The Life Raft Group is excited to cast a new lifeline to increase the quality of life and survival rates of Pediatric and SDH-Deficient GIST patients worldwide through the establishment of a collaborative research consortium. The Pediatric & SDH-Deficient GIST Consortium, unveiled today at the Biden Cancer Summit, supports patients and caregivers at a critical time to share data, tissue, and resources to address the urgency of cancer treatment.
The Pediatric& SDH-Deficient GIST Consortium is committed to: Build a Consortium Accelerate Research Create Guidelines Create and Expand Clinical Trials Involve Patient Advocacy Groups [...]
State of GIST: A Clinical Panel of Experts Presented by Jason Sicklick, MD, Moores Cancer Center, University of California, San Diego; and the GIST Experts Panel - Markku Martti Miettinen, MD, National [...]
Life Fest 2018 was held in Miami, Florida, July 13-15th. Along with the presentations by various experts, the program (view agenda) featured a Pediatric Track and our first GIST DO IT - Walk [...]
2020 Brought a Global Health Crisis That Has Challenged GIST Patients We had planned this year to be in New Orleans to share valuable information about GIST Research, to enjoy fellowship with [...]
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