GIST

How ‘Next Generation’ DNA sequencing is changing the landscape of GIST research and diagnosis

During the past dozen years gastrointestinal stromal tumors have emerged from oncologic obscurity and reached center-stage in the development of targeted therapies for solid tumors. Tyrosine kinase inhibitors (TKIs) like imatinib, sunitinib, and more recently regorafenib, have proven effective in suppressing the growth of metastatic GIST, allowing patients to live far longer than during the previous era of ineffective chemotherapy.

By |2019-09-20T12:32:28-04:00June 11th, 2013|News, Research|
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First GDOL Chicago hits a homerun!

Our first Chicago GIST Day of Learning (GDOL) was a huge success! Over 50 GISTers and their families gathered for a great day of learning, and sharing experiences. It was wonderful to get to meet so many new people and reconnect with old friends.

By |2019-09-20T12:33:07-04:00June 11th, 2013|GIST Education, Gleevec, News, Patient Support, Survival Strategies|
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10 things you need to know about hospice

1. Comfort is the goal of hospice – Many people think entering hospice is “giving up”, but that’s not true. Hospice is where you go to live comfortably with issues that are no longer in your control. The nurses and staff of hospice are there to assist you and your family in your own home, and are available 24 hours a day, seven days a week if needed.

By |2019-09-20T12:34:45-04:00June 11th, 2013|Coping with GIST, News, Patient Support|
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New Blood Testing Technology May Be Effective in Detecting Mutations

A new blood testing technology may lead to major changes in treatment of Gastrointestinal Stromal Tumors. In a study presented in April by Dr. George Demetri of the Dana-Farber Cancer Institute at the American Association for Cancer Research annual meeting, the blood test was shown to be more effective than traditional biopsies in identifying secondary mutations in GIST.

By |2019-04-08T08:57:19-04:00June 11th, 2013|Mutational Testing, Mutations, News|
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Carrie Broussard and Her ‘Little Brave Warrior’

Carrie Broussard gave birth to a healthy baby boy on May 1, after finding out she was pregnant in the midst of treatment with Gleevec. She named him Caelum, which in the Celtic origin means ‘brave warrior’ and in the Australian origin means ‘a gift.”

By |2018-07-06T13:41:08-04:00June 11th, 2013|Gleevec, Member Stories, News|
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GIST patient shares her experience with Hospital

LRG Global Relations Coordinator Piga Fernández Kaempffer, a GIST patient, gave a conference about her own disease, drawing the attention of professionals, who carefully listened as she shared with them from her perspective the evolution of this pathology.

By |2019-09-20T12:35:20-04:00June 11th, 2013|Advocacy, Global, Member Stories, News|
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GIST specialists give support at Miami GIST Day of Learning

GIST Day of Learning (GDOL), a free event, was held at the University of Miami on Saturday, March 23. Sponsored through the generous support of Bayer, Novartis and Genentech, this event is the second in a series of seminars focusing on the education and support of GIST patients and their families.

By |2019-09-20T12:48:50-04:00April 1st, 2013|Events, GIST Education, News, Patient Support|
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The Life Raft Group
155 US Highway 46, Suite 202
Wayne, NJ 07470 USA

Phone 973-837-9092
Contact us by email

The Life Raft Group is a 501 (c)(3) non-profit organization (tax id: 82-0547746) providing support through information, education, and innovative research to patients with a rare cancer called GIST (Gastrointestinal Stromal Tumor). View our 990 Form here

The information provided on the LRG site is designed to support, not to replace, the relationship that exists between a patient/site visitor and his/her physician. Read our Privacy Policy

 

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The LRG website is dedicated in perpetuity to the memory of Mary S. Golnik.

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