10 things you need to know about hospice

1. Comfort is the goal of hospice – Many people think entering hospice is “giving up”, but that’s not true. Hospice is where you go to live comfortably with issues that are no longer in your control. The nurses and staff of hospice are there to assist you and your family in your own home, and are available 24 hours a day, seven days a week if needed.

By |2019-09-20T12:34:45-04:00June 11th, 2013|Coping with GIST, News, Patient Support|

New Blood Testing Technology May Be Effective in Detecting Mutations

A new blood testing technology may lead to major changes in treatment of Gastrointestinal Stromal Tumors. In a study presented in April by Dr. George Demetri of the Dana-Farber Cancer Institute at the American Association for Cancer Research annual meeting, the blood test was shown to be more effective than traditional biopsies in identifying secondary mutations in GIST.

By |2019-04-08T08:57:19-04:00June 11th, 2013|Mutational Testing, Mutations, News|

Carrie Broussard and Her ‘Little Brave Warrior’

Carrie Broussard gave birth to a healthy baby boy on May 1, after finding out she was pregnant in the midst of treatment with Gleevec. She named him Caelum, which in the Celtic origin means ‘brave warrior’ and in the Australian origin means ‘a gift.”

By |2018-07-06T13:41:08-04:00June 11th, 2013|Gleevec, Member Stories, News|

GIST patient shares her experience with Hospital

LRG Global Relations Coordinator Piga Fernández Kaempffer, a GIST patient, gave a conference about her own disease, drawing the attention of professionals, who carefully listened as she shared with them from her perspective the evolution of this pathology.

By |2019-09-20T12:35:20-04:00June 11th, 2013|Advocacy, Global, Member Stories, News|

Who’s laughing now? Actress Mo Collins uses humor in her battle with GIST

Mo Collins is not your typical actress/comedienne, because Mo Collins is a GIST survivor. Keep reading to learn more about Mo Collins and her fight against GIST. Mo is using this gift in a very selfless way by organizing a comedy fundraiser for the Life Raft Group and GIST research.

By |2019-09-20T12:49:27-04:00April 1st, 2013|Advocacy, Member Stories, News|

Stivarga becomes first FDA-approved third-line drug treatment for GIST

The Food and Drug Administration, in a much-anticipated announcement for Gastrointestinal Stromal Tumor patients, approved Bayer Pharmaceutical’s drug, Stivarga, for use as a third-line treatment for advanced GIST in February.

By |2019-09-20T12:49:52-04:00April 1st, 2013|Drug Treatment, News, Side Effects, Stivarga|

Family planning with GIST can be a hard decision

Family planning can be one of the hardest decisions patients with GIST make, but for Carolina Ponce Williams the decision was easy. At high risk for progression, Carolina longed to start a family. So she decided to adopt.

By |2019-09-20T12:50:17-04:00April 1st, 2013|Member Stories, News, Pediatric GIST|
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