The LRG Welcomes Young Jae Kim as Our Newest Liaison
The Life Raft Group is pleased to welcome Mr. Young Jae Kim (YJ) as the new LRG representative (liaison) in our global network!
April Stephens, Long-Term Survivor
The average GIST patient is in their 50s or older when diagnosed with GIST. The rare exception is usually a pediatric SDH- deficient GIST, but April’s case is a case of ‘the rarest of the rare’ in that she was only 20 years old when she first encountered GIST and was not SDH-deficient.
Patient of the Month for January: John Abrams
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. John Abrams shares his story.
GIST & Creativity – Gewelry for GIST with Christine Gonzales
Christine, a former elementary school teacher, is raising three sons with husband Adam, in New Mexico. She doesn’t feel that creativity has always had a place in her life, but teaching elementary school always provides opportunities for innovation and creative thinking so perhaps it’s a matter of perspective.
GIST & Creativity – Art Quilter, Crafter, Teacher Claire Monaghan
GIST happened soon after her first quilt was accepted into a quilt exhibit and after participating in her first holiday craft show last December. Every GIST patient has a unique story about how they were diagnosed and where their journey takes them but Claire can literally credit a recurrence of her sister's ovarian cancer in January as the reason she found her GIST tumor.
GIST & Creativity – Sculptor & Public Artist, Tim Watkins
You may have spotted a creation by May & Watkins Design and not even realized it. They create public art, or industrial sculptures – art that is commissioned for public spaces. The partnership of artists, Carol May and Tim Watkins, began after meeting as 20-somethings on scholarship at the Skowhegan School of Painting & Sculpture in Maine.
GIST & Creativity – Industrial Designer, John Paul Zagami
Pratt institute graduate, John Paul Zagami studied industrial design. John’s journey with GIST began with unexplainable digestive issues. After suffering a kidney stone attack which led to an ER visit, a mass was found.
A Seat at the Table
The Connective Tissue Oncology Society (CTOS) meeting was held Nov 18-21st and was chaired by three women in the field. This year’s meeting special because it was held virtually due to COVID-19. One of the new aims of the CTOS organization is to incorporate the patient perspective in more of its sessions.
CTOS 2020 Virtual Session – Key Highlights
CTOS 2020 was conducted virtually from November 18th through the 21st, given the nature of our current environment, much of the content of the conference centered on COVID-19 and its impact on cancer patients, but there were a number of sessions and presentations and posters devoted to GIST as well.
Custo efetividade do teste genético para pacientes recém diagnosticados com GIST
Em um artigo publicado em 29 de setembro de 2020, na revista "JAMA Network Open", o Dr. Jason Sicklick, Moores Cancer Center, UCSD, e colegas relataram que o teste genético é custo-efetivo e benéfico para pacientes com GIST metastático recém-diagnosticados. .