In Memoriam – Nikki Morales
Dear Nikki, You have left us too soon, but your presence will be felt far and wide for a very long time. From the moment I first spoke with you on the phone, I [...]
Global Representative Spotlight – Adriana María Garzón Pinzón, Colombia
Adriana’s journey with cancer began 15 years ago. After conquering Stage 3 breast cancer, she changed her professional path and poured her skills, talents, and experience into serving other cancer patients. In 2004, Adriana, [...]
State Leader Spotlight – John Abrams, Colorado, USA
John Abrams, our new LRG State Leader for Colorado, has a vision of helping others cope with GIST. John’s story spans a journey with three types of cancer. First, misdiagnosed in 1997 with leiomyosarcoma, [...]
Ron Agypt – In Memoriam
Ronald George Agypt, 62, born in Johnstown, PA on June 3, 1956 to George Abraham Agypt and Mary Jane (Abraham) Agypt (both deceased), passed away on April 10th, 2019, at his home in Alpharetta, [...]
SDH in Action!
“You're off to Great Places! Today is your day! Your mountain is waiting, So... get on your way!” ― Dr. Seuss, Oh, The Places You'll Go! Dear SDH-deficient GIST [...]
LRG Webcast: Optimizing GIST Treatment
Are you interested in optimizing your treatment? In 'Optimizing GIST Treatment', this world-renown GIST expert from Europe will share his wealth of experience and insight about how he has helped patients live longer, and [...]
Patient of the Month for May: Chelsea Ozeri
As a part of our Faces of Courage series, we are featuring a patient story each month. Each one of our members has a unique story to tell, but they all reflect the intrinsic courage [...]
LRG Webcast: Genetic Testing and SDHx Mutations
Genetic Testing and SDHx Mutations: What do they have to do with PGL/GIST/Pheos? This webcast highlights how SDHx mutations impact risks for paraganglioma, pheochromocytomas, and GIST, why genetic testing is helpful for any diagnosis [...]
GIST DO IT NJ – Walking for a Cure with LRG Members & Friends
On Saturday, May 4, 2019, at 8:00 am, The LRG is hosting our first GIST DO IT Walk in New Jersey, at Verona Park. This fundraiser for #GISTresearch is being held in loving memory [...]
Patient of the Month for April: Brett Fisher
As a part of our Faces of Courage series, we are featuring a patient story each month. Each one of our members has a unique story to tell, but they all reflect the intrinsic [...]